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Dementia Care in Australia – Policy, Practice and Research
Sally W C Chan School of Nursing and Midwifery, Faculty of Health and Medicine, University of Newcastle, Australia Robert Sanson-Fisher School of Medicine and Public Health, University of Newcastle, Australia |
Abstract
Dementia is estimated to be the fourth leading cause of the overall burden of disease and the second leading cause of all deaths in Australia (Australian Bureau of Statistics, 2016). This paper reports an interview with Laureate Professor Robert Sanson-Fisher from the University of Newcastle, Australia. The purpose of the interview was to share with readers on the policy, practice and research of dementia care in Australia. The paper highlights the key principles in the Australia’s National Framework for Action on Dementia, the concept of patient-centred care, journey for families and support people, end of life care, and research development in dementia care. International and interdisciplinary collaboration is essential to generate global solutions to improve the lives of people living with dementia and their families. |
摘要
澳洲的認知障礙症照顧 – 政策、實踐及研究 認知障礙症預計將成為全球第四大主要負擔的疾病及澳洲第二大死亡原因(澳洲統計局,2016)。本文報告了澳洲紐卡素大學Professor Robert Sanson-Fisher的訪問。訪問目的是與讀者分享澳洲對認知障礙症照顧的政策、實踐和研究。本文強調澳洲於國家框架下有關對認知障礙症行動的主要原則、以患者為中心的照顧概念、家庭和支援人員的歷程、臨終照顧以及對認知障礙症照顧的研究發展。對於創造全球解決方案以改善患者及其家庭的生活,國際及跨專科的合作不可或缺。 |
Keywords
Dementia care research, patient-centred care, care for caregivers, end of life care |
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Empowering foreign domestic workers to provide quality dementia care at home
Karen H Y Wat W Y Fung John C K Lee Jenny H Y Tang K K Lau Keith S W Sham Stephanie S K Chu Wings W S Chan Queenie Y P Wong Psychogeriatric Team, Kwai Chung Hospital |
Abstract
Dementia has become a major burden in social and health care resources. This is especially true in elderly suffering from behavioural and psychiatric symptoms of dementia (BPSD). BPSD can cause significant caregiver burden and predict institutionalization. In Hong Kong, the employment of the foreign domestic worker as the care worker for elderly with dementia has become a common mode of care. However, many of these workers are not trained to meet the specific needs of the elderly with BPSD. In this pilot project, four identical training workshops on BPSD were organized with a total attendance of 113 foreign domestic workers. The programme was received positively by the participants and was potentially beneficial in reducing the BPSD and caregiver strain. The trilingual caregiver guide “Caring for elderly with dementia: Guide to foreign domestic workers” was published in English, Indonesian and Chinese and can serve as a desktop reference for the users. |
摘要
訓練外籍家庭傭工讓患認知障礙症長者居家安老 認知障礙症已為醫療和社會服務帶來沉重負擔,若患者出現行為和情緒問題,照顧者的壓力就更大,患者可能更早需要安老院舍服務。香港有很多家庭聘請外籍家庭傭工照顧患認知障礙症的長者,但這些傭工大多沒有接受專門的訓練。本先導計劃舉行了四次「認知障礙症長者的行為和情緒症狀工作坊」,共有一百一十三名外籍家庭傭工參加,參加者對課程的反應正面,表示有關訓練能減輕患者的症狀及照顧者的壓力。另外,本計劃出版了一本三語的照顧手冊(英語、印尼語及中文),以方便家庭傭工作參考。 |
Keywords
dementia caregiver training, foreign domestic workers, behavioural and psychological symptoms of dementia |
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Mobile cognitive-health (MCH) project for the older adults living in the community in Hong Kong - a preliminary study
Grace Y Y Lee 1 Calvin C K Yip 2 Ben M L Wong 1 Teresa L F Leung 3 Benson W M Lau 4 Danny Chan 5 David W K Man 4 1 Occupational Therapy Department, Kwai Chung Hospital 2 School of Medical & Health Sciences, Tung Wah College 3 Occupational Therapy Department, Prince of Wales Hospital 4 Department of Rehabilitation Sciences, The Hong Kong Polytechnic University 5 Mind Delight Memory and Cognitive Training Centre, Hong Kong Christian Family Services |
Abstract
A single-blinded randomized controlled trial (RCT) using a pre- and posttest design was adopted for studying the effectiveness of a new mobiledevice-operated errorless learning training programme. Older adults of age 60 or above (N=61) living in the community were recruited, and among them 35 subjects were randomly allocated to a treatment group (TG) while 26 subjects were likewise assigned to an active control group (ACG) with conventional interventions (e.g. general programme including games and social activities) at elderly centres. TG attended a 30-session, computerassisted errorless learning training programme in 6-8 weeks using tablet PCs. Results showed that there were statistically significant differences between the treatment group and the active control group on the Brief Assessment of Prospective Memory (BAPM) total score (p=0.031) and Fuld Object Memory Evaluation (FOME) retention score (p=0.019), results of which provided preliminary evidence of the beneficial cognitive effect of this training program on older adults living in the community. |
摘要
「智醒開心流動平台」 「智醒開心流動平台」是一個新開發、用於智能流動裝置並採用無錯誤學習方法的訓練程式。本研究採用單盲隨機對照試驗及前測後測方式探索「智醒開心流動平台」對於長者的效能。61位於社區居住的長者獲邀參與本研究,其中35位被隨機分派為訓練組接受為期6至8星期,共30堂的平板電腦「智醒開心流動平台」訓練,而26位則被隨機分派至觀察組接受長者中心的一般訓練。結果顯示相比觀察組,訓練組的前瞻性記憶評估(短版)總分(p=0.031)及費特物件記憶測試(記憶力)分數(p=0.019)都有明顯進步。本研究初步顯示「智醒開心流動平台」對於提升社區居住的長者的記憶功能有正面的作用。 |
Keywords
Errorless memory training, mobile technology, older adults |
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Frontotemporal Dementia: An Updated Discussion and Local Case Vignettes
Connie T Y Yan Department of Psychiatry, Prince of Wales and Shatin Hospital Joshua M Y Tsoh Department of Psychiatry, The Chinese University of Hong Kong |
Abstract
This article reviews the updated scientific findings from the medical literature and from a recent International Conference on Frontotemporal lobar degeneration (FTLD) and clinical syndromes of frontotemporal dementia (FTD) in September 2016, regarding the epidemiology, diagnosis and treatment aspects of the condition. In addition, the authors shared potentially useful and practical approaches towards non-pharmacological treatment in FTD with two local case vignettes with the wish to attract more fruitful discussions on strategies to handle the clinical symptoms and enhance the quality of life of persons with FTD when no curative treatments are available. These are important given the fact that a rapidly rising number of persons are affected in Hong Kong and globally alike with population ageing (as most of the cases’ clinical syndrome took onset in their sixth decades of life). |
摘要
額顳葉認知障礙症新知及本地個案研究 本文描述有關「額顳葉認知障礙症」的一些最新的醫學理解( 包括流行病學調查,診斷和治療等方面)。這方面的資訊來自近期的醫學文獻,以及二零一六年九月份的一個大型國際額顳葉認知障礙症會議中公開發表的資料。另外作者用兩個個案的型式,介紹了一些可行的非藥物性治療方法,希望能和讀者引起有關的討論,目的是在目前沒有藥物能夠根治此病或減慢病程進度的情況下,一起研究能夠有效控制病徵帶來的困擾,以及改善患者生活質素的辦法。這病症患者通常在六十歲左右開始發病;因為人口在本地和世界各處均邁向老化,患者的數目正大幅增加,因此增加對於額顳葉認知障礙症各方面的理解,實在是刻不容緩的。 |
Keywords
Dementia, Ageing, Epidemiology, Treatment, Diagnosis, Frontotemporal Dementia (FTD) |
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